Brain Tumor Companion
A brain tumor diagnosis can feel overwhelming. Whether you are on watch and wait (WW), planning a surgery, or a survivor post-surgery, this condition can be extremely lonely. Although we have online groups available, having the opportunity to speak with someone who has been on the journey can bring you a sense of calm and clarity.
I'm a survivor. I managed six years on WW, countless contrast MRIs, a neurologist, four different neurosurgeons, and a craniotomy in December 2018. I've faced many difficult and triumphant days. I created Brain Tumor Companion (BTC) to be a safe place for you to get support and resources to assist you with the challenges and uncertainties of diagnosis.
As a Patient Advocate and Director of Operations in the medical field, I understand the complexity of the healthcare system. Schedule time with me today if you feel I can be of help to you!
Areas of Expertise
Patient Advocate, Brain Surgery Survivor, Brain Tumor Companion, Support Group Leader
Why seek support? This journey requires ongoing monitoring and treatment. BTC is a safe space to talk, cry, laugh, vent, be angry, and celebrate your wins. This process is not easy, many days can feel like an endless roller-coaster, you are not alone.
Brain Tumor Companion (BTC) was created because after my craniotomy I wanted to talk with someone who truly understood. I didn't want my questions lost on social media pages under hundreds of comments, nor did I want to hear a therapist who has not experienced this diagnosis tell me it would be OK. Feeling alone made me frustrated, scared, and sad. In an effort to fill this gap, I created Brain Tumor | Meningioma Companion. Whether a zoom meeting with me or a Brain Tumor Zoom Support Group (BTZSG) with peers, I am committed to creating a safe space for togetherness. The only one who can truly understand this diagnosis is one directly touched by it.
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